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certified Robaholic
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nedra... *clears throat*

i have just finished talking to you, and for some reason,
i cannot stop crying. could it be willie on repeat, singing
"you won't catch me crying.... over you" ???? *winks*
could be, i guess. or it could just be that it's starting to really
sink in. after all this time praying for SOMEONE to figure out
what was causing you so much suffering, it's finally happened!

*blows nose*

funny how tears of relief are just as wet as the sad kind Wink

::squishes ya good::

i have been so proud of you neke, this past week. you kept
your head up and faced a difficult time with honor, beauty
and grace... this disease has been so hard on you, but in
the end you will kick it's assssssss, no doubt in my mind.

riki's absolutely right, you are so SO strong, but i'm so glad
you still need a lil help, now and then Wink feels good, being needed!

*sings badly*
she ain't heavy...
she's my sistahhhh.... " Smiler

*cough* back to the main issue here.... your diagnosis!!!
i can't think of a better reason to celebrate, and although i
swore off vodka years ago, i have a few other goodies you'd
surely appreciate Wink and of course, they're gluten-free! Big Grin

i'll be along with a big fat one, soon as i get off work.
for now.... just THIS.... as requested! Big Grin Big Grin



wow, that's blurry Frowner
fix that up a little bit for me, could ya????? Wink

*looks a bit closer* WOW! Eeker
oh my, maybe blurry is okayyyyyyy
*gasps and runs off to bed*






 
Posts: 4698 | Location: all that i am, all that i ever was, is here in your perfect eyes, they're all i can see | Registered: 08 February 2003Reply With QuoteEdit or Delete MessageReport This Post
superfan
Posted Hide Post
quote:
Originally posted by Nedra:
quote:
Originally posted by imagine-K:
(((((((((((((((((((((NEDS)))))))))))))))))))

so the next matcbox tour the two of us in leather pants, biker style Wink

stay strong, you can do it! Big Grin
huge hugs!!!!!! angie


*laughs*

If Rob won't wear them...

We WILL!!!

*laughs more*

THANK YOU!

Luv ya lots.

HUGS and SMOOCHES


Hey, if it'll make you feel any better I'll slip my ass into some tight leather pants. lol. Noy sure how great they'd look, but We could always try and see...(I'd probably hate them, though...I'm not a fan of tight pants. heheh)

Anyways, Glad you finally got something positive out of all of this...at least you KNOW now, and can manage it. That's a good thing. Wink *hugs* love y, hon. see ya around.

\\//peace!
Dalkonian


_________________________________________________________

www.mustardplug.com

"Greed is for amateurs. Disorder, Chaos, Anarchy.. Now that's fun!"
-- The Crow
 
Posts: 4207 | Location: Florida | Registered: 22 August 2001Reply With QuoteEdit or Delete MessageReport This Post
Technicolor Dreamer

Posted Hide Post
quote:
Originally posted by pegasus:
Nedra, my friend got back to me, I forwarded her you email addy, and she said she will be in contact with you soon to offer support/help/suggestions....whatever! Cool


YAY!

Thanks, Peg!

I really appreciate this...

SMOOCHES
 
Posts: 29699 | Location: Chained to FATE | Registered: 14 May 2003Reply With QuoteEdit or Delete MessageReport This Post
superfan
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Hey Nedra,

I have the same thing!! I was dignosed last year as having a moderate intolerance to Gluten/Wheat, after becoing so tired from driving home from work, I had to have a nap every afternoon, feeling so drained all the time, and for someone that is in their mid-twenties, that is not a good sign!! After all the tests done by my GP, he found NOTHING, but I still knew something was wrong. I went to a natropath, and she send me for blood tests, and apart from Gluten, I am allergic to.......

Beetroot
Egg Yolk (That's my fave part of the egg!!)
Mustard
Assparatine (Not spelled correctly I know, that sugar sweetner stuff)
Coffee
Cola
MSG
Brewers Yeast

And a bunch of other stuff I can't remember!

So, after only a WEEK on this new diet, everyone was commenting on how slim I was looking!! (Which is just a bonus) I was feeling so much more energy, and my dermatitis on my scalp had cleared up (Mum had always suspected too much yeast as the cause of those flair-ups on my scalp)

But having moved to London, and being on a pretty shit-arse wage, I can't afford to keep up the diet, but I am slowly discovering things here and there that I can actually eat, and I am adjusting my diet to suit.


Rob in London 22/06/05
Us at Live8 London

Have a look at my photo's!! Go to http://photobucket.com/albums/v739/JulesinLondon/

and click on any album you want to view...... it's a work in progress!

 
Posts: 3427 | Location: Travelling around the world at the moment (no, I really am!! I'm living in London at the mo) | Registered: 12 September 2002Reply With QuoteEdit or Delete MessageReport This Post
superfan
Posted Hide Post
quote:
Originally posted by Nedra:
quote:
Originally posted by Serephina:
***HUGS*** I'm so happy they found a diagnosis, Neds... I think there's even someone else on the board who has it.

When I was poking around the internet a couple of days ago, I found some great cookbooks and stuff for people with Celiac... remind me to point you in that direction.


Seems to me there IS another person...

Anyone remember WHO?

Thank you, sweetie!

I've been checkin' it out all over, but recipes not as easy to find.

Please DO show me.

HUGS


I think that would be me! Razzer


Rob in London 22/06/05
Us at Live8 London

Have a look at my photo's!! Go to http://photobucket.com/albums/v739/JulesinLondon/

and click on any album you want to view...... it's a work in progress!

 
Posts: 3427 | Location: Travelling around the world at the moment (no, I really am!! I'm living in London at the mo) | Registered: 12 September 2002Reply With QuoteEdit or Delete MessageReport This Post
Technicolor Dreamer

Posted Hide Post
quote:
Originally posted by Riki:
I was (and am) a big, freakin' nag, yes. I nagged in silence more than you'll ever know.

It all makes sense now, doesn't it? All those symptoms? I'm eager to hear what the nutritionist and the specialist have to say. I want details!

I have a feeling, Nedra. This is just the beginning of big things for you. You're just starting to take back your life. I wish I could articulate how proud I am of you.

*holds up a vodka toast*

To the strongest woman I know.

*holds up a second vodka toast*

To Rob, for introducing me to my best friend.

*holds up a third vodka toast, spilling some of it in the process*

Oops! To August, may you feel better and better as the month goes on. Wink

mml


<=== looks at Riki passed out on the floor and whispers, "Thank you, baby..."

*mutters, "Yeah,it makes SO much sense why in the HELL didn't that first "specialist" test me for it? Unknown auto-immune disease... my @SS!I can't help you... bullsh*t."

Grrrrrrrrrrrrr...

<=== covers Riki with a soft blanket; sips some vodka

*thinks, "The BEGINNING of me reclaiming my life started before I got SO sick. DAYUM! Riki was there for THAT, also. Am I lucky, or what?*

<=== gets pillow for her, too; sips some more

*wonders, "What mix/plan of the universe brought me to the GD after years of digging Matchbox?"*

*Is soon lost in thoughts about the meaning of life and the ponderment of what is REALLY important in this world.*

<=== says quietly, "Love you, Riki. Sweet Dreams. Nite."
 
Posts: 29699 | Location: Chained to FATE | Registered: 14 May 2003Reply With QuoteEdit or Delete MessageReport This Post
Technicolor Dreamer

Posted Hide Post
quote:
Originally posted by KatBluYs:
nedra... *clears throat*

i have just finished talking to you, and for some reason,
i cannot stop crying. could it be willie on repeat, singing
"you won't catch me crying.... over you" ???? *winks*
could be, i guess. or it could just be that it's starting to really
sink in. after all this time praying for SOMEONE to figure out
what was causing you so much suffering, it's finally happened!

*blows nose*

funny how tears of relief are just as wet as the sad kind Wink

::squishes ya good::

i have been so proud of you neke, this past week. you kept
your head up and faced a difficult time with honor, beauty
and grace... this disease has been so hard on you, but in
the end you will kick it's assssssss, no doubt in my mind.

riki's absolutely right, you are so SO strong, but i'm so glad
you still need a lil help, now and then Wink feels good, being needed!

*sings badly*
she ain't heavy...
she's my sistahhhh.... " Smiler

*cough* back to the main issue here.... your diagnosis!!!
i can't think of a better reason to celebrate, and although i
swore off vodka years ago, i have a few other goodies you'd
surely appreciate Wink and of course, they're gluten-free! Big Grin

i'll be along with a big fat one, soon as i get off work.
for now.... just THIS.... as requested! Big Grin Big Grin



wow, that's blurry Frowner
fix that up a little bit for me, could ya????? Wink

*looks a bit closer* WOW! Eeker
oh my, maybe blurry is okayyyyyyy
*gasps and runs off to bed*


*blinks*

*blinks again*

KAT! Now YOU are gonna make me cry.

Why? Because you, ALSO, have been right there with me through every step of this.

I've thought a lot about tears lately...

I used to HATE to cry, because I only did it when I was frustrated with anger or overcome with relief.

When I had my kids, I learned to cry in joy.

When my loved ones died, I learn to cry in sorrow.

Hon? You have shown me how to cry in empathy and support. I'm forever grateful for that.

And, yes, they are ALL wet and make my eyes/nose ugly and red! LOL

You've listened: REALLY listened, checked on me, tried to be healthier with me, shared your life, laughed and cried with me OVER life, cheered me up/distracted with pics like THAT...

DAYUM!!!

*smiles YUGELY through misty eyes*

Uhhh...what was I sayin'???

*tears eyes away*

Alllllllllllllllllllllllll those things and so much more...

I firmly believe people don't say this enough. Hope I HAVE! But, just in case...

I love you my dear dear friend! You've brightened my life in more ways than I could count.

THANK YOU, sweetie!

HUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUU
UUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUU
UUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUU
UUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUU
UUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUGS
 
Posts: 29699 | Location: Chained to FATE | Registered: 14 May 2003Reply With QuoteEdit or Delete MessageReport This Post
superfan
Posted Hide Post
And the good news is Neds, you can eat all the rice and corn and potatoes you want!!!

BRING IT ON!!!!!!!!
I don't know what it's like in America, but just before I left Australia, it was becoming more and more known that people were intollerant to Gluten...... I have been reading a book before I left saying that our bodies were not designed to digest gluten - it's the glue that holds all your food together, and makes things fluffy! The caveman thousands of years ago didn't even have gluten in their diet, that's why you never saw a fat caveman!!! hehehe

So, in conclusion..... GLUTEN IS EVIL!!!!

Neds, you just made me call my mum in Australia to send me the book, it lists all the alternative foods I can eat etc. If you want to buy the book, it's by an Australian model who has the ''disease'' (I don't call it a disease) by the name of Bessie Bardot if you want to go to her website it's http://www.bessiebardot.com and the book is called Bessie's Body Serets. I don't know if you'll be able to buy the book from there, but if you go to any Aussie book website you maybe able to buy it and get it shipped.

Just wanted to let you know that, I'm sure you have found some books already, but this book helped me so much!!

This message has been edited. Last edited by: julia1978,


Rob in London 22/06/05
Us at Live8 London

Have a look at my photo's!! Go to http://photobucket.com/albums/v739/JulesinLondon/

and click on any album you want to view...... it's a work in progress!

 
Posts: 3427 | Location: Travelling around the world at the moment (no, I really am!! I'm living in London at the mo) | Registered: 12 September 2002Reply With QuoteEdit or Delete MessageReport This Post
Rob's Dream
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That's wonderful news Nedra i'm so happy you finally know what's up hope your better real soon... (((((hugs))))))


 
Posts: 14523 | Location: Living on a Prayer in MASS | Registered: 12 May 2003Reply With QuoteEdit or Delete MessageReport This Post
'Rob' me please!
Posted Hide Post
quote:
Originally posted by Nedra:
but I can still have wine, vodka and tequila!

*smiles YUGELY*





I will certainly remember that for the fall! We must TOAST!! Love ya Sweetie!
HUUUUUUUUUUGS!




Karen
 
Posts: 2380 | Location: On top of the world in the Green Mountains! | Registered: 23 December 2002Reply With QuoteEdit or Delete MessageReport This Post
Broadway Alien
Posted Hide Post
It must be a YUGE relief to finally know after all this time what was causing your health problems!! I'm very happy that you can now begin the process of getting back 2 good!! Smiler And hopefully, since it's a nutritional problem, you won't have to be on those nasty steroids again!!!

*hopes and prays that Neds can get better without meds*

Good luck to you, dear. Please keep us apprised of your progress, and of course, that of little Wil's.

*hugs and smooches*




love and strength to you and yours-rob and mari
 
Posts: 655 | Registered: 24 February 2005Reply With QuoteEdit or Delete MessageReport This Post
Technicolor Dreamer

Posted Hide Post
quote:
Originally posted by Dalkonian:
Hey, if it'll make you feel any better I'll slip my ass into some tight leather pants. lol. Noy sure how great they'd look, but We could always try and see...(I'd probably hate them, though...I'm not a fan of tight pants. heheh)

Anyways, Glad you finally got something positive out of all of this...at least you KNOW now, and can manage it. That's a good thing. Wink *hugs* love y, hon. see ya around.

\\//peace!
Dalkonian


Yeah, guy, I wanna see you in tight leather pants!

You don't have to wear them very long...

*winks*

THANK you for the good wishes and the hugs!

I'm SO relieved to have a path to good health, now!

This has SUCKED!!!

Much love and many HUUUUUUUUUUGS
 
Posts: 29699 | Location: Chained to FATE | Registered: 14 May 2003Reply With QuoteEdit or Delete MessageReport This Post
Technicolor Dreamer

Posted Hide Post
quote:
Originally posted by julia1978:
Hey Nedra,

I have the same thing!! I was dignosed last year as having a moderate intolerance to Gluten/Wheat, after becoing so tired from driving home from work, I had to have a nap every afternoon, feeling so drained all the time, and for someone that is in their mid-twenties, that is not a good sign!! After all the tests done by my GP, he found NOTHING, but I still knew something was wrong. I went to a natropath, and she send me for blood tests, and apart from Gluten, I am allergic to.......

Beetroot
Egg Yolk (That's my fave part of the egg!!)
Mustard
Assparatine (Not spelled correctly I know, that sugar sweetner stuff)
Coffee
Cola
MSG
Brewers Yeast

And a bunch of other stuff I can't remember!

So, after only a WEEK on this new diet, everyone was commenting on how slim I was looking!! (Which is just a bonus) I was feeling so much more energy, and my dermatitis on my scalp had cleared up (Mum had always suspected too much yeast as the cause of those flair-ups on my scalp)

But having moved to London, and being on a pretty shit-arse wage, I can't afford to keep up the diet, but I am slowly discovering things here and there that I can actually eat, and I am adjusting my diet to suit.


Julia! So it was YOU we were thinking of...

SORRY, but THANKS for posting!

I'm glad you found out this early in your life! Another 20 years like with me REALLY makes you SICK!

Guess what *I* am allergic to?

MYSELF!

*laughs*

It's true. I'm intolerant to my OWN antihistamines.

THAT is under control!

Now the diet...

I really hope you find a way to keep up with it. It IS expensive!

I'm glad to know that you started feeling better so quickly!

I feel for you, hon!

GIGANTIC SQUISHES
 
Posts: 29699 | Location: Chained to FATE | Registered: 14 May 2003Reply With QuoteEdit or Delete MessageReport This Post
Technicolor Dreamer

Posted Hide Post
quote:
Originally posted by julia1978:
And the good news is Neds, you can eat all the rice and corn and potatoes you want!!!

BRING IT ON!!!!!!!!
I don't know what it's like in America, but just before I left Australia, it was becoming more and more known that people were intollerant to Gluten...... I have been reading a book before I left saying that our bodies were not designed to digest gluten - it's the glue that holds all your food together, and makes things fluffy! The caveman thousands of years ago didn't even have gluten in their diet, that's why you never saw a fat caveman!!! hehehe

So, in conclusion..... GLUTEN IS EVIL!!!!

Neds, you just made me call my mum in Australia to send me the book, it lists all the alternative foods I can eat etc. If you want to buy the book, it's by an Australian model who has the ''disease'' (I don't call it a disease) by the name of Bessie Bardot if you want to go to her website it's http://www.bessiebardot.com and the book is called Bessie's Body Serets. I don't know if you'll be able to buy the book from there, but if you go to any Aussie book website you maybe able to buy it and get it shipped.

Just wanted to let you know that, I'm sure you have found some books already, but this book helped me so much!!


THANK YOU!

I will check it out!!!

Yeah, I'm trying to think of gluten as POISON!

It's helping me not WANT the "bad" stuff.

In many places here, the gluten-free food is readily available.

I live in a small town, however, with not many choices.

Looks like I will have to drive to bigger cities or shop online some...

S'ok! I can DEAL!

MORE MORE MORE HUGS
 
Posts: 29699 | Location: Chained to FATE | Registered: 14 May 2003Reply With QuoteEdit or Delete MessageReport This Post
Word Junkie

Posted Hide Post
quote:
Originally posted by Nedra:
quote:
Originally posted by Riki:
I was (and am) a big, freakin' nag, yes. I nagged in silence more than you'll ever know.

It all makes sense now, doesn't it? All those symptoms? I'm eager to hear what the nutritionist and the specialist have to say. I want details!

I have a feeling, Nedra. This is just the beginning of big things for you. You're just starting to take back your life. I wish I could articulate how proud I am of you.

*holds up a vodka toast*

To the strongest woman I know.

*holds up a second vodka toast*

To Rob, for introducing me to my best friend.

*holds up a third vodka toast, spilling some of it in the process*

Oops! To August, may you feel better and better as the month goes on. Wink

mml


<=== looks at Riki passed out on the floor and whispers, "Thank you, baby..."

*mutters, "Yeah,it makes SO much sense why in the HELL didn't that first "specialist" test me for it? Unknown auto-immune disease... my @SS!I can't help you... bullsh*t."

Grrrrrrrrrrrrr...

<=== covers Riki with a soft blanket; sips some vodka

*thinks, "The BEGINNING of me reclaiming my life started before I got SO sick. DAYUM! Riki was there for THAT, also. Am I lucky, or what?*

<=== gets pillow for her, too; sips some more

*wonders, "What mix/plan of the universe brought me to the GD after years of digging Matchbox?"*

*Is soon lost in thoughts about the meaning of life and the ponderment of what is REALLY important in this world.*

<=== says quietly, "Love you, Riki. Sweet Dreams. Nite."


*yawns, stretches*

Man, I slept well. Wonder why?

We need to go kick that first doctor's @ss, I think. You with me?

You think you're feeling better now? Imagine how good you're going to feel eighteen days from now? Big Grin

mml,
yr





 
Posts: 7427 | Location: Westchester, NY | Registered: 20 May 2003Reply With QuoteEdit or Delete MessageReport This Post
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